New Jersey Rett Syndrome Association

The mission of the New Jersey Rett Syndrome Association is to contribute towards an improved quality of life for girls and women affected by Rett Syndrome, support families dealing with the disorder, increase awareness and support ongoing research for treatment and cure of Rett syndrome. We believe that by raising public awareness of Rett Syndrome we can foster public attitudes conducive to early diagnosis, intervention and treatment of our children as we encourage and support research for the cure of Rett Syndrome. We hope this website will link local families together, help provide some of the resources we all need for our children and keep everyone informed of the many events and activities in NJ. Please send us your pictures, videos and stories to share and contact us if you have ideas for something you would like to see added.

We look forward to hearing from you!

Leslie Greenfield Founder, Executive Director and Heather’s mom

NJRSA is proud to collaborate with Dr. Theresa Bartolotta and Dr. Patricia Remshifski and the faculty and students of Monmouth University to create the Program for Research and Support for Rett Syndrome. Please click below to visit our site for more information about the services available to our families, as well as professionals and advocates interested in helping our children with Rett syndrome.