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OCTOBER IS RETT SYNDROME AWARENESS MONTH

In Jan. 2007 Gov. Jon Corzine joined us at the Natural History Clinic in New Brunswick to sign the Rett Syndrome Awareness bill, declaring the third Tuesday of each October as Rett Syndrome Awareness Day in NJ. This it the month to contact your local media and ask them to do a story about Rett. Talk to your school, co-worker, and anyone you can to help spread awareness this month.

On Monday October 27, 2008 Robin Turner---our BEST Rett Syndrome Advocate---made it possible for us to be on the floor of the NJ State Assembly in Trenton for a formal resolution for Rett Syndrome Awareness! We had 10 of our girls on the floor, in front of the full Assembly for a reading of the formal resolution declaring Rett Syndrome Awareness Day in NJ.

 

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On Monday October 18, 2010 we were in front of the NJ State Senate for another proclamtion with in front of the full Senate! It was a great way for us to put the faces of RTT in front of our legislators. They will not forget us! Write to your local representatives to thank them for their help! Keep spreading the news!

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Formal resolution for Rett Syndrome Awareness Day

NJ Senate

Monday October 18, 2010

Thank you to Senate President Stephen Sweeny and Senator Bateman for thier assistance! To watch the video of the proceeding, click on the link below. Our portion of the video is appoximately 13 minutes long, begining right after the Pledge of Allegience. There is some silence as Senator Sweeny comes to take picutres with us, but keep watching, until you see Marykate "speak" to the Senate!

click Senate Session Oct 18, 2010 2:00pm at:

wwww.njleg.state.nj.us/media/archive_audio2.asp?KEY=S&SESSION=2010

For more information contact Leslie Greenfield 866-601-0100 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

To kick off Rett Syndrome Awareness Month, on October 1, 2010 families from NJ, NY, CT and MA  stood in the pouring rain outside the Today Show in  New York City to talk to Al Roker about Rett Syndrome.

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Visiting the Today Show in 2011